The challenge
Children and young people with sickle cell disease (SCD) struggle with limited understanding of their condition, lack timely blood transfusions and affordable treatments, and face inadequate and non-patient-centered healthcare. They experience stigma and misinformation in their communities.
Our services
Screening
We help families at risk of sickle cell disease confirm their trait status by offering readily available screening with guaranteed timely results.
Pain management
We help children and adolescents with sickle cell disease reduce crises and episodes of severe pain by providing affordable and accessible hydroxyurea treatment.
Genetic counseling
We help families from sickle cell endemic communities to dispel fear, myths and gain courage to seek screening and care by offering them accurate and reassuring information through high quality gene counseling.
Mental health
We help children and carers affected by sickle cell disease to overcome mental ill health by offering quality 1-2-1 psychosocial talking therapy
Healthcare provider training
We help primary healthcare providers to gain needed knowledge and skills to offer patient-centred SCD care through training, mentoring and a facilitating a community of practice
Research
We help health authorities access evidence on the effectiveness of treatment interventions, evaluate healthcare delivery, and identify gaps in care by conducting local research.
Blood transfusion
We help children and adolescents living with SCD and anaemia complications to readily access blood transfusions which are affordable, timely, and patient-centered